Testimonials
Signs of Inflammatory Breast Cancer: Nicki’s IBC Story
In October of 2024, Nicki was diagnosed with Metastatic Inflammatory Breast Cancer (IBC), a rare and aggressive form of breast cancer that she had never even heard of before her diagnosis. It changed her life in ways she never imagined. This is her story.
“It all started in April 2024 when I noticed a tubular-like structure in the six o’clock region of my left breast. I went to my gynecologist to have her assess my suspicion. She was able to palpate the tubular-like structure and thought it would be best to send me for a mammogram with ultrasound just to be on the safe side (I’d had a mammogram in October 2023 that was unremarkable). The mammogram with ultrasound results were negative, showing no evidence of malignancy. They suggested for me to follow up in a year for my annual mammogram.
“In July and August 2024, I noticed a small rash at the ten o’clock region of my left breast. The rash didn’t itch or hurt, and it wasn’t raised. Mind you, I did not correlate the tubular structure and the rash at this point. I started noticing some other rash areas come up on my left breast. I decided I would try to get into a dermatologist, as over-the-counter topical antifungals were not helping eliminate the rash areas. I contacted a dermatologist near my house to make an appointment, and to my surprise, they had a cancellation, and I was able to see a nurse practitioner that same day.
“Diagnosis was Streptococcus contracted from a previous, unknown, untreated strep throat episode in the recent months. That made sense as I had been very ill in February 2024. I let this illness run its course, with no visit to my primary care provider.
“The nurse practitioner prescribed PCN and scheduled an appointment in thirty days for a follow up. Fast forward thirty days (October 11, 2024)—the rash had not improved, and there were a few new rash spots throughout my left breast. The nurse practitioner was still highly suspicious for dermatitis of some sort but thought it would be best to go ahead and biopsy the rash. I received a call on October 18, 2024 (one day after my fiftieth birthday) with the devastating news that I have Metastatic Inflammatory Breast Cancer.
“Those words still echo in my mind. I felt a mix of fear, shock, and disbelief. IBC doesn’t show up like typical breast cancer. There was no lump, no obvious warning signs—just changes that were confirmed to overlook with a negative mammogram. By the time I was diagnosed, everything felt like it was moving so fast.
“From that point on, my life became a whirlwind of appointments, port placement, scans, and treatments. I started TCHP chemotherapy, followed by a left mastectomy. Due to residual disease after the TCHP regimen, I had to start a second round of chemo and immunotherapy while starting radiation. Each step was overwhelming. The physical toll was hard—losing my hair, radiation burns, dealing with fatigue, and feeling like my body wasn’t my own. But the emotional toll was even heavier. I had moments when I felt strong and moments when I wondered if I could keep going.
“This journey has taught me more about strength than I ever thought possible. I have learned to ask for help, to lean on my family and friends and find hope in the smallest moments.
“Being diagnosed with IBC has also opened my eyes to how little awareness there is about this disease. I had never heard of it before, and now I want to make sure other women know what to look for, because it can save lives. IBC is not found on mammograms. IBC only shows itself on an MRI, hence why my mammogram in April 2024 was negative for any findings. If bringing awareness, education, and support to people facing this battle can help even one person get diagnosed earlier or feel less alone, then it’s worth every word.
“To anyone reading this who is going through cancer right now: you are not alone. This fight is hard, but so are you. There will be days when you feel like giving up, DON’T. Take one day at a time. Celebrate the small victories and never lose hope.
“Thank you, Personal Symmetrics for giving me a platform to share my story and for being a light for so many of us in the darkest times. Together, we can make a difference.”
Inflammatory Breast Cancer (IBC) is a rare and aggressive form of breast cancer that is often misdiagnosed initially due to its unusual symptoms. Instead of forming a distinct lump, cancer cells block lymphatic vessels in the skin of the breast. It spreads quickly, often in a matter of weeks or months, and tends to invade nearby lymph nodes and tissues early, causing visible inflammation and skin changes.
IBC symptoms, which are often mistaken for infection, injury, or mastitis, may include:
- Redness, warmth, and swelling over one-third or more of the breast
- Thickened or pitted skin resembling an orange peel
- Pain or tenderness
- Rapid increase in breast size
- Nipple inversion or discharge
- Swollen lymph nodes under the arm or collarbone
If you notice any sudden changes in breast appearance, especially redness, swelling, or skin thickening without a lump, seek immediate medical attention. Early and accurate diagnosis of IBC is critical for improving outcomes.
Cincinnati’s Personal Symmetrics is a post-mastectomy boutique that has served the needs of women in the Ohio, Kentucky, and Indiana region for more than twenty-five years. Our goal is to educate you on your post-surgery options, to be a valued member of your recovery team, to bring back your comfort and confidence, and to help you feel like yourself again.
Contact us to set up your free initial consultation. In a warm and friendly setting, our board-certified clinical staff will guide you through the fitting process, the choices that you have, and the many different products available to you.
Resources:
https://theibcnetwork.org/
https://www.bcrf.org/about-breast-cancer/inflammatory-breast-cancer/
https://www.mdanderson.org/cancerwise/what-does-an-early-inflammatory-breast-cancer-rash-look-like.h00-159617067.html
https://www.mayoclinic.org/diseases-conditions/inflammatory-breast-cancer/symptoms-causes/syc-20355413
Medical Disclaimer: The information provided here is for general informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you read on the internet.
Michelle - HOPE IN SHARING AND SYMMETRY
What began as a personal journey through breast cancer has become a source of hope and encouragement for thousands. Learn how Michelle is using TikTok to share her story and inspire others facing similar challenges.